KCNA2 Epilepsy Awareness Day 5K Fun Run

Run, walk, or roll for our 3rd annual fun run to raise awareness for KCNA2 Epilepsy in beautiful Cook Park! For this year's event, we also have a goal of raising $10,000 to support current research of treatment options for two of the three main types of KCNA2 (gain-of-function and loss-of-function). Our scientific team at the University of Tübingen in Germany are ready to test the effectiveness of their treatments, but funding will run out at the end of this year. If we can raise $10,000 at this event, in combination with money our organization already has, we will be able to provide bridge funding for a year until their next funding cycle kicks in. Instead of allowing this essential research to sit idle for a year, you can help us get treatment to our KCNA2 families faster!

What is KCNA2?

KCNA2-related developmental and epileptic encephalopathy is a neurological disorder caused by a mutation on the KCNA2 potassium channel. The mutation causes the potassium channel to function improperly resulting in epilepsy and developmental disorders. There are a variety of complications for each individual such as intractable seizures, developmental and cognitive delays, and complex medical conditions. Learn more at: kcna2epilepsy.org

Event Day Schedule 

8:30 AM - Packet pick-up and last minute registration

9:15 AM - Run begins

9:30-11:00 AM - Finish line refreshments, raffle, and gathering

11:00 AM - Course closes and event ends

Important Details

Packet pick-up, start, and finish are all located at Shelter 4 of Cook Park, Tigard.All abilities are welcome! Run, walk, roll, skate, or scoot!The entire course is within Cook Park and all paths are shared with the general public. Please be courteous of others and stay to your right.There will not be a bag check so please plan accordingly.Free parking is available throughout Cook Park and there are two ADA spots nearby.Public restrooms are available near the start/finish.Portland weather can be unpredictable. This event will happen rain or shine!Dogs: dogs are welcome to join us on the run/walk, but must be on a leash. 

Registration Cost

Early Bird pricing  - Before July 1:

$30 per adult

$10 per child

Regular price - July 1 through August 15:

$40 per adult

$15 per child

Last minute signups - After August 15:

$45 per adult

$20 per child

What's included? Performance t-shirt (men's, women's and youth sizes!), bib number, raffle entry, free coffee, and finish line refreshments. T-Shirts are on a first come, first serve basis, so register as soon as possible to guarantee your size. 

*Virtual participants will also receive a raffle entry.

Virtual Option

Gather your friends and family and do your 5K fun run wherever you are! Submit your results here on RunSignUp or send us a snapshot of your GPS run and we will include them in the final results. Photos are also welcome and encouraged!

USA: Register by August 15 to receive your t-shirt and packet in the mail before the event date. Registration will be accepted after this date but we cannot guarantee that you receive your items before the event date.

International: If you would like to receive a t-shirt, you will need to cover some of the shipping costs which will be determined at the time of shipping.

*If you are interested in hosting your own KCNA2 Awareness Day event, contact Oriana at kcna2funrun@gmail.com for support!*