Cystic Fibrosis Association of North Dakota

Money Raised: $3,250 Charity Goal: $40,000

About Cystic Fibrosis Association of North Dakota

The Cystic Fibrosis Association of North Dakota (CFA) devotes its time and financial resources to helping North Dakotans with cystic fibrosis (CF) and their families by:

  • Assisting with the costs of medications and medical equipment not covered by insurance
  • Providing funding for lung transplants
  • Assisitng with transportation costs for those who have to travel long distances for CF care.
  • Providing college scholarships so young people with cystic fibrosis can focus on studies, and not compromise their education because they need jobs to support their educational endeavors
  • Informing the public about cystic fibrosis and current research
  • Lobbying to protect individuals with CF and their families from undergoing undue hardship and ensuring their right to receive health care coverage.
     

The CFA is a statewide non-profit corporation. It is not affiliated with any national or international parent organization, nor does it receive any government assistance.

A dedicated staff of four professionals coordinates activities throughout the state.
 

Our History

The Cystic Fibrosis Association of North Dakota was formed by parents of children with cystic fibrosis in 1980 to raise funds for research, education and assistance to persons suffering from cystic fibrosis.  The Association is not affiliated with the Cystic Fibrosis Foundation or any other parent organization, nor does the Association accept or receive any government funding.

Since its inception, the Association has assisted hundreds of North Dakotans and provided almost two million dollars in programs and services to assist North Dakotans with CF.

 

Our Mission

The Cystic Fibrosis Association of North Dakota exists to assist families and individuals dealing with cystic fibrosis by providing financial, emotional and educational support in their day to day battle with this unrelenting, incurable disease.

 

About Cystic Fibrosis

Cystic fibrosis (CF) is the most common fatal genetic disease in the US today. It affects about 30,000 children and young adults, and occurs in approximately one in every 2,000 live births. One in 25 Americans (more than 12 million people) is an unknowing, symptom-less carrier of the defective gene causing CF. If both parents carry the defective gene, there is a 25% chance that each child they have may have CF.

There are over 800 different genetic mutations causing cystic fibrosis. The most common mutations attack the lungs and digestive system. This results in frequent, severe lung infections, which eventually kill the lungs, as well as halting the production of pancreatic enzymes necessary for digestion and nutritional absorption.

Although there is no cure, genetic research has produced several medications that have found increasing success in treating the symptoms of the disease. These medications are very expensive, and must be taken every day together with enzyme supplements, antibiotics, special vitamin supplements and mucolytics. In addition, most young people with CF must do chest physiotherapy and inhalation therapy several times each day in order to maintain optimum health.


Help a Fundraiser Team Below

#1
Bismarck Turkey Trot 2017
Team has raised:
$855
#2
Team Thompson
Team has raised:
$810
#3
Charlie's Angels
Team has raised:
$365
#4
Team Caring for Karen
Team has raised:
$325


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Total Raised
$3,250



Recent Donors
Weldon Wagner
$30.00
Kristin Hager
$75.00
Kriste Erickson
$50.00
Bill Willis III
$25.00
Anonymous
$30.00
Anonymous
$45.00
Anonymous
$20.00
Sean Cleary
$50.00
Kendra Weigel
$15.00
Krystle Lamprecht
$250.00
Robert Lauf
$25.00
Jane Cleary
$50.00
Rose Augustine
$60.00
Ryan Perket
$
Stephanie Canham
$50.00
Rita Sieben
$50.00
Jeffrey A Steele
$
Anonymous
$25.00
Chase Johnson
$
Larry Axlund
$50.00
Anonymous
$10.00
John Wagner
$
Anonymous
$50.00
Kevin Keller
$25.00
Emily Poppe
$
Laura Jensen
$10.00
Anonymous
$75.00
Judith Keller
$
Peter and Eileen Welk
$25.00
Sabina Gasper
$
Anonymous
$25.00
Anonymous
$10.00
Christie Lowe
$
Bonnie Landenberger
$10.00
Anonymous
$5.00
Anonymous
$100.00
Joseph Kalvoda
$20.00
Michael D Wetzel
$50.00
Patricia Sebastian
$100.00
Tina fricke
$20.00
Alvin Jaeger
$
Matt Thompson
$20.00
Anonymous
$50.00
Anonymous
$30.00
Erin Paulson
$50.00
Kathryn Ring
$100.00
Cecelia K Dasinger
$20.00
Wiilliam Chaussee
$50.00
Sonna Anderson
$25.00
Cheryl Neff
$10.00
Top Donors
Krystle Lamprecht
$250.00
Monique McGraw
$100.00
Kathryn Ring
$100.00
Patricia Sebastian
$100.00
Rhonda Mahlum
$100.00

 

Donor Comments


"Trot like the wind."

- Meghan Dwyer



"#BeatSean"

- Anonymous



"For all that have loss. "

- Gary Thompson



"Karen Cossette"

- Nancy Strand Strand



"You are my hero Karen! Keep up the fight!"

- Monique McGraw



"#BeatSean"

- James Poolman



"Thanks for helping my CF pals! Run fast.🦃🏃🏼"

- Angela Chite



"Go Charlie's Angels!"

- Jennifer Rupe



"Costume required:)"

- Rebecca Matthews



"Good luck, Matt."

- Wiilliam Chaussee



"My first cousins daughter"

- Anonymous



"Betty Kurle and Pearl Kensmoe"

- Matt Thompson



"What a great cause for a turkey trot!"

- Tina fricke



"#BeatSean"

- Emily Poppe



"Good luck, guys!"

- Kevin Keller



"In memory of a little girl with CF who taught me a lot about living. "

- Anonymous



"Run QUICK stromme"

- John Wagner



"I forgot to do this but I hope Sean won"

- Robert Lauf



"Yay Thomas!"

- Kendra Weigel



"Thanks Max!"

- Sean Cleary



"Thanks Bryce!"

- Anonymous



"Thanks Meech and Jeff!"

- Anonymous



"Thanks Wags!"

- Anonymous



"Good Luck Thompson Family!"

- Bill Willis III